Conditions

Living with frontotemporal dementia

Frontotemporal dementia usually begins at a younger age than Alzheimer's, so daily life is dominated by employment, finances and family roles rather than by memory. Loss of insight means the person often does not perceive a problem, which shapes everything.

Quick answer

Frontotemporal dementia usually begins at a younger age than Alzheimer's, so daily life is dominated by employment, finances and family roles rather than by memory. Loss of insight means the person often does not perceive a problem, which shapes everything.

Why the younger onset changes the problems

Many people are diagnosed in their fifties or sixties, often while working and sometimes with dependent children or a mortgage. The consequences are practical and urgent: capacity to work, income protection, disability benefits, and financial decisions made before the diagnosis that may need reviewing. Impulsive spending is a recognised early feature, so financial safeguarding is frequently needed sooner and more actively than in later-onset dementias. These are not secondary concerns; they are usually the presenting crisis.

Living with loss of insight

This is the hardest part for families and it is worth naming clearly. Loss of insight is a feature of the illness, not denial or stubbornness. The person may genuinely not perceive the changes others see, which means reasoning, explaining and persuading do not work in the way they would otherwise. Strategies that work tend to be environmental rather than argumentative: removing opportunities rather than winning agreement, redirecting rather than correcting, and accepting that some conversations cannot be resolved.

Behaviour, language and support

Behavioural change including loss of empathy, socially inappropriate remarks and altered eating is distressing partly because it looks like personality change rather than illness. Where the language variants dominate, communication strategies matter more: simple sentences, extra time, and using writing or pictures. Family strain in this condition is particularly high, partly because the person appears physically well and partly because the changes affect relationships directly. Support for the carer is not optional here.

About this practice

Clinical Neurology Specialists has been physician-owned since 1998, when Leo Germin, M.D., FAANEM founded it. Five board-certified neurologists and four advanced practice providers see patients at the Las Vegas and Henderson offices, each with its own AANEM-accredited electrodiagnostic laboratory.

Clinical Neurology Specialists is an adult outpatient neurology practice for patients 18 and older. The practice performs no surgery and operates no imaging suite, infusion suite or interventional pain programme, and provides no emergency or inpatient care.

Emergency & crisis resources: Clinical Neurology Specialists is not an emergency service. For stroke symptoms, a seizure lasting more than five minutes or any medical emergency, call 911 or go to the nearest emergency room. For a mental health crisis, call or text 988 (Suicide & Crisis Lifeline).

Frequently asked

Questions about living with frontotemporal dementia

Why is frontotemporal dementia so hard on families?
Because it usually begins at a younger age, often while working, and because behavioural change looks like personality change rather than illness. Loss of insight means the person may not perceive any problem, so reasoning and explaining do not work the way families expect them to.
What does loss of insight actually mean?
That the person genuinely does not perceive the changes others can see, as a feature of the illness rather than denial or stubbornness. Persuasion therefore does not work. Effective strategies tend to be environmental, such as removing opportunities, rather than argumentative.
What financial issues come up early?
Impulsive spending is a recognised early feature, so financial safeguarding is often needed sooner and more actively than in later-onset dementias. Capacity to work, income protection and disability benefits also become pressing, since many people are diagnosed while still employed.
How should I respond to inappropriate behaviour?
Redirect rather than correct where possible, and change the environment rather than trying to win agreement. Explaining the diagnosis to people who will encounter it, where you are comfortable doing so, reduces the social cost considerably. It is illness rather than choice.
What if the main problem is language rather than behaviour?
Then communication strategies matter most: short simple sentences, extra time to respond, and using writing, pictures or gestures alongside speech. The language variants are progressive too, so approaches that work now will need revisiting as things change. The language variants are progressive too, so approaches that work now will need revisiting as things change rather than being settled once.

Physician-reviewed. Reviewed by the physicians of Clinical Neurology Specialists — board-certified neurologists, AANEM-accredited electrodiagnostic laboratories, physician-owned since 1998. Reviewed 1 August 2026. This article is general education for adults 18 and older and is not a substitute for a consultation.

Next step

Speak to a board-certified neurologist

Adults 18 and older, at the Las Vegas and Henderson offices. Call 702-804-1212 or request an appointment online.